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Tag Archives: cerebral palsy


Little feet, marked for measurements, and a smiley face. Round one of my little girls corrective equipment collection begins.

Moved me to tears with her 19 month post for Maggie. I know she doesn’t like a lot of attention drawn to herself or her blog, but I just had to share this post.

Poem from her post:

Special Child
by Sharon Harris

You weren’t like other children,
And God was well aware,
You’d need a caring family,
With love enough to share.
And so He sent you to us,
And much to our surprise,
You haven’t been a challenge,
But a blessing in disguise.

Your winning smiles and laughter,
The pleasures you impart,
Far outweigh your special needs,
And melt the coldest heart.

We’re proud that we’ve been chosen,
To help you learn and grow,
The joy that you have brought us,
Is more than you can know.

A precious gift from Heaven,
A treasure from above,
A child who’s taught us many things,
But most of all – “Real Love”

The simplistic beauty of nature in my back yard.


Seeing my daughter with cerebral palsy crawl over, push her self up, and begin petting her dog.

God is good, and infinitely greater at revealing his mercies than I often believe possible.

To say I’ve been a bit busy lately would be the understatement of the year.

Finalizing critical content packages to allow the decommission of our previous systems management software.  Transitioning our infrastructure to the new systems as well, and performing software rationalizations in our environment has put me at a limit to sitting and writing.

Oh, did I mention general systems integration for a new company that I’m not certain I have a future with still?

I do thoroughly enjoy the work though as it’s largely technical and requires little (or allows for little) theory crafting sessions on the best possible way.  Don’t get me wrong, I love planning, but planning without action to me is just a miserable existence.  I don’t thrive on anarchy, but I enjoy doing work as opposed to talking about it; and I enjoy clutch situations at times.

In other, life altering news; our daughter was officially diagnosed with Cerebral Palsy last week.  I’m not really sure where else to go with that outside of the fact it is what it is.  It was a rough day last Monday when we got the news; but I think I am past the diagnosis and back to looking at my daughter for what she is, not what she will or will not be.

I have said these things to you, that in me you may have peace.  In the world you will have tribulation.  But take heart; I have overcome the world. – John 16:33

When I see my beautiful daughter smile, I’m reminded how lucky I am that she’s alive and in our care.  Even if that burden is great, I gladly bear it; as would most parents.  I’m sure there will still be anger, and pain dealing with this so please, if you have been then continue to pray for us.

Will on the other hand, my main man.  He’s absolutely digging “getting muscles” lately and is continually asking me if such and such builds muscles, or telling me how or where he got some new muscle. He’s also been doing a really great job lately with being a responsible big brother to his sister in her trials.  Admittedly he still gets frustrated at times with the amount of attention his sister receives, but his love and encouragement for her continues to amaze me and makes me proud to be his father.

So back to the building muscles thing.  I came home last night from work, and my son comes yelling  “DADDY COME HERE I WANT TO SHOW YOU SOMETHING”.  So I walk into the family room, and he’s taken a toy shopping cart and pulled it up to the mantle, and proceeds to do wide grip overhand chin ups.  It was a rest day for me too so I just did some yoga that night as well, which my son was MORE than eager to get involved in; the entire time explaining to me how or why it builds muscles.  That kid is awesome.

Hah, well I ended up writing a lot more then I expected; I should quit while I’m ahead.  Take care until next time.